Paramount to match funds donated to NORD in
support of new film Novocaine
QUINCY,
Mass., Feb. 27, 2025 /PRNewswire/ -- The National
Organization for Rare Disorders (NORD®) is teaming up with
Paramount Pictures to raise awareness of rare disease and fundraise
to support the rare disease community in conjunction with the
upcoming release of Novocaine, an action thriller starring
Jack Quaid.
The joint campaign runs through Rare Disease Day® on
Feb. 28, during which time Paramount
Pictures will match every dollar raised — up to $40,000 — to support NORD's mission to improve
the health and well-being of the more than 30 million Americans
living with rare disease.
No one is immune from rare disease, which collectively impact
one in 10 Americans, half of whom are children. Because each
specific condition impacts a small number of people, medical
expertise and funding for research are often scarce. Patients face
delayed diagnoses, limited treatment options, and significant
financial and emotional burdens. People living with rare diseases
incur medical costs that are three to five times higher than those
without a rare disease.
"Rare disease patients, their families, and caregivers need new
allies in the public beyond those directly impacted by rare
conditions," said Alexa Moore,
NORD Vice President of Development. "We are grateful for
Paramount Pictures' support and commitment to helping us raise
awareness of rare diseases as a public health crisis that is larger
than any one specific disorder, affecting our loved ones, friends,
neighbors, and colleagues. We are excited to work with them to
amplify the voices of those who need our support while raising
critical funds to continue our work."
Donations to NORD directly impact the rare disease community,
with nearly 93% of every dollar donated funding patient assistance
programs and services. Since 2018, NORD has given $200 million in financial assistance to patients
and caregivers to cover lifesaving medications and other critical
costs.
"We are honored to collaborate with NORD to bring attention to
the millions of Americans impacted by rare diseases," said
Jennifer Lynch, Senior Vice
President, Corporate Social Responsibility and Internal
Communications, at Paramount Pictures. "Through this
fundraiser, in conjunction with Rare Disease Day, we hope to raise
awareness and drive meaningful, long-term support for this
important cause."
To further engage the public, NORD's Running for Rare® team will
participate in a 5K event in
Austin, Texas, on March 1 at Southern Heights Brewery. Running
for Rare is NORD's signature charity running program in which
runners join with community partners diagnosed with rare disorders
to raise awareness while fundraising for NORD.
The Austin event is open to all
paces — whether running, jogging, walking, or rolling. Attendees
will get to meet Jack Quaid, and
those who register will earn a free T-shirt and tickets to attend
an advanced screening of Novocaine on Feb. 28, Rare Disease Day.
Taking place on the last day of February every year, Rare
Disease Day is an international initiative dedicated to raising
awareness and advocating for improved diagnosis, treatment, and
care for the 300 million people living with rare diseases globally.
NORD is proud to serve as the official U.S. sponsor for this event.
More information about Rare Disease Day can be found at
rarediseaseday.us.
To learn more about the 5K event,
visit the event page.
About the National Organization for Rare Disorders
(NORD)
With a 42-year history of advancing care, treatments and policy,
the National Organization for Rare Disorders (NORD®) is the leading
and longest-standing patient advocacy group for the more than 30
million Americans living with a rare disease. An independent
501(c)(3) nonprofit, NORD is dedicated to individuals with rare
diseases and the organizations that serve them. NORD, along with
its more than 350 patient organization members, is committed to
improving the health and well-being of people with rare diseases by
driving advances in care, research and policy. For more
information, visit rarediseases.org.
About Paramount Pictures
Paramount Pictures Corporation (PPC), a global producer and
distributor of filmed entertainment, is a unit of Paramount Global
(NASDAQ: PARA, PARAA), a leading global media and entertainment
company that creates premium content and experiences for audiences
worldwide. Paramount Pictures has some of the most powerful brands
in filmed entertainment, including Paramount Pictures, Paramount
Animation, and Paramount Players. PPC operations also include
Paramount Home Entertainment, Paramount Pictures
International, Paramount Licensing Inc., and Paramount Studio
Group.
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SOURCE National Organization for Rare Disorders (NORD®)
